Life, Death And All The Rest.

I have delivered a baby in an elevator, watched him take his first breath in my hands.
I've held a cold, stiff infant and told the new parents that he was gone.
I've felt the sweat drip from my face, having done CPR, worked, prayed and then despite my best efforts have pronounced husbands, wives, moms, dads, brothers, sisters, sons and daughters dead.
I have found limp, lifeless people and have heard the grieving sounds of family turn to hopeful joy when I say, "We got a pulse back".
I've seen the murdered, mangled, torn, broken and I've seen successful suicides.
I've helped the hopeless, homeless and the insane.
The raped, abused, forgotten and the very much loved.
Rich, poor, middle class, educated, clueless, lazy and hard working....all are susceptible

If life is like a box of chocolates then the reality is that after awhile it melts, goes rancid or gets eaten by ants.

I think life is more like a roller coaster with steep climbs, thrilling, fast drops, twists, turns, ups, downs, that turn you upside down, make you laugh, cry, trill, scare, scream, puke and pee your pants.
This past week, within the same 15 minute window I brought a pulseless, breathless 77 year old man back to life as just 7 hours away a 44 year old fraternity brother breathed his last in the ICU.
There's birth, death and the in between.

It's the in between that determines the later on.

The choices we make, the things we do or don't do, the thoughts, judgments.

Romans 6:23 says, "For all have sinned and fall short of the glory of God"

Paul wrote in the book of Timothy:
"This is a faithful saying, and worthy of all acceptation, that Christ Jesus came into the world to save sinners; of whom I am chief. - 1 Timothy 1:15"

I think Paul was actually speaking of me.

But Grace comes with these things.
None are good enough. Not the televangelists with the fancy suits, diamond rings and the fake hair.
Pontiffs, preachers, prostitutes, professors, politicians, policeman, pole dancers, paramedics....all sin..all will die.

All will stand before God.
None, not one earning their way to heaven.

"Who has saved us and called us with a holy calling, not according to our works, but according to His own purpose and grace which was granted us in Christ Jesus from all eternity," - 2 Timothy 1:9

No one is good enough.

James 2:10 " For whoever keeps the whole law and yet stumbles in one point, he has become guilty of all."

So, no matter your demographic (I'll let you fill in the blank of separation or inclusion) is more worthy than the other.
All need Jesus to enter heaven.

"Jesus said to him, “I am the way, and the truth, and the life; no one comes to the Father but through Me." - John 14:6

People point and say, "but what about all of those hypocrites?"
We've all been hypocrites at one time or another.
That's why there is forgiveness.

"If we confess our sins, He is faithful and righteous to forgive us our sins and to cleanse us from all unrighteousness." - 1 John 1:9

You may agree or disagree.
It's your choice.
Free to, free not to.
Believe or don't.
But those choices are going to affect the later on.
And as I see too often in my job, we never know when that will come.

Inclán Inklings Of 08

In Lieu of a Christmas Letter Each Year we send out a Year In Review type letter to friends and family. This is the letter we sent.

====================================================================

Psalm 65:11 “You crown the year with a bountiful harvest;
 even the hard pathways overflow with abundance.”

 

What a full year 2008 was for the Inclán family.   So much so that many pages could be filled and not do justice to what had transpired. So, please indulge the brief synopses for each Inclán:

 

Dayan~ Is loving his job at EMSA. Was promoted again and is now sporting shiny Captain’s bars on his uniform collar. Even though work is going well he continues to be in the process for a position in the Fire Department. Next Fire academy is in July. What a long wait. Dayan is also missing an organ after having a cholecystectomy.   

 

Deanna~ Is also missing some organs: tonsils and turbinates.  We are both much happier after that!  Deanna has 3 schools, 5 therapy sessions for 3 kids each week that keep her busy.  In all of it, she has managed to start exercising and is on the downward weight trend.  J  

 

Genesis~ Is in the 4^th Grade. She played her 1^st season of soccer. Had many soccer parents comment that they were amazed that she played so well and were all quite certain that she had at least two years of experience.  She is still very talkative and social.  She is very quick to celebrate for fellow classmates.

 

Shamar~ Is flourishing in school and is showing to be a talented artist in just about every capacity of art. She writes, sings, draws, orates and can juggle chain saws. Well, nor really chain saws, but by the next letter maybe!  She remains the best cuddler around.

 

Corban~ Is loving Kindergarten!  He and Moriah are in separate classes and that has been the best thing ever for them!  He has lost both front teeth and another bottom one, which puts a huge strain on his speech!!  We know that eventually he will have to attend therapy too, but in the meantime, we enjoy him….”weawy”  (really).

 

Moriah & Asher~ Have finally found their forever family and it was made legal on Oct. 21^st!!  We are so relived to have it over.  We are still working on their name change in the medical system, but we have all the important documents!  Moriah, also in Kindergarten, is doing well academically.  She is making friends and continues to get her hair shorter and shorter, on her request!  Asher is attending Early Head Start.  The program is providing some great things for him and we see him flourishing there.  We do look forward to him being at a school MUCH closer to home next year!

 

Grail~ Is a trooper!  He has grown into a great little boy.  Lost all his baby looks and has the emotions of a 4 year old who struggles to get his point across.  So we do have some frustrating moments in our home!  He will attend the same class next year but will go every day and in the afternoon.  He is potty training and doing very well.  We are looking at hearing aids for him and possible celiac disease.  This means he would have to be gluten free.  God is gracious and whatever comes up for any of us, He will provide for all our needs.  He provides rest and strength and chocolate when necessary!  *And He provides hot wings…can’t forget the bountiful provision of hot wings…(*added by Dayan)

 

Hope this finds you solidly in God’s will for your life and in His wonderful presence. 

 

Blessings to all!

The Lord Taketh And The Lord Giveth

The Lord Giveth

It was a long time coming but the day finally happened.
Oct 21st the adoptions were finalized!
Woo, hoo!
For those of you who missed it we have been in the process of trying to adopt my great niece and nephew.
Moriah and Asher were my niece’s kids.
Long story short.
It’s been a long, hair pulling frustrating process, but we now an official family of 8.
Every one of the kids are Ecstatic.
Deanana and I are happy to get the weight off the shoulders and be a family.
Thank you Jesus.

The Lord Taketh

Yesterday I had my gallbladder out.
I’ve been having increasingly worse and increasingly more frequent epigastic pain since 2002.
It was one thing when I only had to grit my teeth and bare through 24 h ours of pain every 6-8 weeks. When it became once and twice a week… No, not going to do it.
Three years ago in Omaha they ran every test under the sun and found nothing.
Since moving to Tulsa it’s when it’s gotten worse. (maybe it’s Tulsa)
I had a doctor down here who only wanted to have me take Prilosec even though I told him that after 6 years of trial that PPI and Histamine-2 blockers and such didn’t work. He insisted that they would.
I changed doctors. And voila, after a series of tests they found a diseased gallbladder.
Six scars across my torso will be worth the elimination of the agony.So, now I have two weeks off of work (I’m going stir crazy the day after surgery so let’s see how that goes)

A Black September

Today marks a year of Sheyn's death.
I remember the joy in my heart when I was dialing his number to tell him I was going to take him to see his favorite football team play. Just the two of us having the quality brother time that he so deserved, but I had never given him.
How quickly that emotion changed.
Like driving your new sports car into a brick wall.
I have dreaded this day as it approached.
One year has not made it easier.
My heart is still heavy.
My eyes filled with tears.
I think of him often.
You never appreciate what you have until you lose it.
I miss him so much.

I saw the Eagles in concert Saturday.
Simply amazing.
Watching such Iconic musicians play right in front of me.
Glenn Fry, Don Henley, Timmothy B Shmit and Joe Walsh.
I thought of how much Sheyn loved music.
Watching Joe Walsh play the guitar I thought, "Wow, Sheyn would have really enjoyed seeing him play." I was having such a good time, but began weeping because you weren't there.
I wasn't able to call you and tell him about it.

Sheyn was more amazing than I ever really knew.
I am blown away by how many people still miss him so much.
People that just stop by my mom's house just to see Sheyn's mom.
Heck, there was even a memorial concert with several bands to raise money for his favorite charity in his memory.

Today sucks.

I miss you Sheyn.

O Captain my Captain!

O Captain my Captain! our fearful trip is done,
The ship has weathered every rack, the prize we sought is won,
The port is near, the bells I hear, the people all exulting,
While follow eyes the steady keel, the vessel grim and daring;

~Now, I hope that is the extent of what Whitman has for me as Captain, otherwise I'll be lying cold and dead on the deck. ;)

So, I've been at my job for 27 months and have promoted from Lieutenant to Captain in less than a year. Dang, I'm blown away and blessed.
I honestly did not expect it.
I've always tried to hope for the best, but expect the worst.
Kind of fatalistic maybe....

They know that I'm also testing for the Fire Department and have promoted me anyway.
It's flattering, but perplexing.
Maybe they are showing that they are clearing the path to promotion to Major soon and it's their way of trying to retain me. If so they have not said anything to that regard.

While EMSA has been very, good to me and I thoroughly enjoy my job , I have to move forward and see what God has planned for me.
I'll train and prepare for Fire, yet I will serve my new post faithfully and with every effort to honor the confidence my superiors have placed in me.
This is the direction I believe He has for me and will follow it until he says otherwise.
So, we'll see how it goes.

"Grail" Expectations

The first time we saw Grail he was five months old. The birth family and adoption councilor were all oohs and aahs about how much he loved to snuggle in. Curious that they thought there was nothing wrong with the fact that a five month old could not lift his head. Most likely they blamed the Down Syndrome. Just like the glee they had in his lack of tongue control. “What do you expect, he has Down Syndrome” I made a vow to myself that I would expect more. No excuses, higher expectations. We saw right away that he was a people person. Grail loved to make eye contact. Loved to make interactive noises (His way of talking) to those in the room. Therapists told us that Grail’s awareness was a good sign. They hinted that his DS was on the “Milder” side. My resolve to have higher expectations for my son grew. I would have none of this sitting in the corner with his tongue hanging out. I envisioned my son with a job.
I just knew he’d be able to have a job busing tables or emptying the trashcans at the food court. I just knew that once he was old enough to leave home he’d be able to live in a group home with other DS adults and become pseudo-self sufficient.

As Grail grew he became much more physically active, strong and capable. He could run and climb. People in the nursery would call him, “That Fast kid”. I cultivated my expectant thoughts in the self-satisfied, if not sanctimonious recesses of my mind. Each milestone we celebrated as a little victory and every time pride welled within me as we saw how Grail grew into a strong, energy filled, and athletic little boy. Friends and family marveled at how obedient my son was. They remarked how amazing it was that a child of his age with DS could know what, “Get self control” meant. “Of course”, I would think smugly, “I have high expectations for my boy”.

Pride can be good, but pride when focused incorrectly, can be an ugly thing.

Welcome to Kansas City and the 2007 National Down Syndrome Congress Convention. Welcome to the slap in the face of my reality. Married DS couples? DS karate instructors? Oh my, DS associate degree holders who swim the English Channel!? My world was turned upside down. Cleaning tables? Taking out Trash? My “High expectations” that I held for my son seem pretty low if you ask me.

What I now realize is that it’s OK for me to have High expectations for Grail. My son may not earn an associates degree or run a marathon, but I need to cultivate and encourage his interests. While doing so I must support every goal that Grail sets and relish in every victory that Grail celebrates. Most importantly throughout whatever path Grail sets to follow I need to just enjoy my son.

An Empty Box For Christmas

The tree is gilded

With tinsel and bells

But something is missing

My soul is not well

The presents are wrapped

With paper and flair

The empty seat a reminder

Of he who is not there

The cold of December

A deep winter chill

Tightens my heart

Still grieving and ill

The Wheel In The Sky Keeps On Turning.

"Oh, the wheel in the sky keeps on turning Ooh,
I don’t know where I’ll be tomorrow
Wheel in the sky keeps me yearning Ooh,
I don’t know, I don’t know
Oh, the wheel in the sky keeps on turning Ooh,
I don’t know where I’ll be tomorrow"
-Journey

Every morning, the alarm clock rings
and it's time to get up and get on with a new day.
To continue on among the world of the living.
Each day it becomes a little easier.
Traction slips every once in a while.


Multiple things can be true at once.
I miss Sheyn.
It still hurts.
Still seems surreal.
His cell phone is disconnected but
I still don't have the heart to erase his number from my phone.
It seems so terminal.
Like a betrayal.
My little brother is gone,
but I know God's mercy was in it.

We had Sheyn for 23 years after having been diagnosed with a multiform high grade astrocytoma.
We were gifted with having him for that many years.

Even though his cancerous kidney was removed, the cancer had metastasized to stage 4 in his lungs.
His other kidney was failing.
Sheyn had a long, arduous battle ahead of him.
A battle that had a very poor prognosis.
No one wants to die slowly and painfully.
Sheyn was no different.

He died quickly, really.

~~~~~~~~~~~~~~~~~~~~~~~

Sheyn died on the afternoon of Sunday September 9th.
His memorial service was Thursday the 13th.
(One month after his 36th Birthday)
His funeral was Friday the 14th of September.
There were between 250-300 people at his memorial service.
I knew Sheyn had friends.
I had no idea just how many and how many
loved him so much.

~~~~~~~~~~~~~~~~~~~~~~~~


Sheyn was a regular face in the Omaha music scene.
He didn't play, didn't sing and didn’t write music or lyrics.
Sheyn supported his many friends who were the
"Stars of the hour"
They came to look for his smiling face in the crowd enjoying their music as they played.
Over and over again, the many bands members came up to us and told of us of their affections for Sheyn.
It was like a tape recorder.
"We loved Sheyn. He was the most kind, caring, loyal, supportive, gentle person I've ever known."
"Now his chair is going to be empty"

Rough looking tattooed hard ass heavy metal musicians
were weeping.
Mourning THEIR loss of Sheyn.
Lingering past the allotted time for the memorial service, reluctant to leave him.
Perhaps in hopes that he would rise from his casket in a "Gotcha" of some morose joke.
Maybe a vain attempt of not wanting to let him go.
Sheyn, now gone, was "The Star of the Hour"

~~~~~~~~~~~~~~~~~~~

My family said his final days were foretelling in hind site.
The last two weeks of his life he was feeling progressively worse,
but family and friends all said that, "He looked better than he has in years."
Many said that he "Absolutely Glowed"
Two days before he died my brother was so weak that he couldn't leave the house
and told my mother that he knew he didn't have much time left.
The day before he died, although he was feeling terrible.
My sister and my mother were struck by, "How beautiful he looked"
The morning of the day he died my sister said that
he walked by her and she thought, "He looked so beautiful it took my breath away
and I had to do a double take. He was so handsome I couldn't even speak"
He was dead just a few short hours later.
The hand of The Lord was upon him.
His presence so near as he prepared to receive him that
God's glory was shining upon Sheyn.
Family and friends saw this

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Sheyn was a witness to many.
His friends said, "Sheyn told me all the time that Jesus was the only one worth trusting"

When we sorted through his things he had so many witnessing tracts.
Books on how to witness to other religions.
Books on prophecy.

The testimony of his humble, unassuming gentle witness
was evidenced by the vast variance
of people at both services.
Atheists, agnostics, Hindu, black, white, Asian, Hispanic, Protestants, Catholics...
All deeply grieving.
All deeply touched.
All brought together to hear the final testimony of his life.
To hear the Gospel's message of salvation proclaimed on Sheyn's behalf.
Many who would not voluntarily step into a church sat in a mortuary eagerly listening to the minister share why Sheyn was the way he was.
Because Sheyn, reflected Jesus, in everything he did more than anyone I ever knew.
Because of Sheyn's life, Sheyn's death was a mechanism to bring others into the Kingdom of Jesus Christ.

~~~~~~~~~~~~~~~~~~~~~~~~~~

The day after his funeral.
My sister happened upon one of Sheyn's books.
A book of subject that was a particular fascination of Sheyn's.
A book on Biblical prophecy.
My sister said that she felt God tell her to turn to page 40.
Between pages 39 and 40 was our father's obituary.
She heard God say to her, "Sheyn is with your dad in heaven."
Because of long seeded hurt and bitterness towards our father, only God could have said this to her.

~~~~~~~~~~~~~~~~~~~~~~~~~

Stepping back from it all.
The pieces all fit.
The picture all forms a picture giving evidence that the timing
was within God's perfect design.
Sheyn is reveling in God's glory.
He's smiling down on us, having the time of his life in a perfect body.
He wouldn't want to return if given a chance.
Who would?
We can still hurt.
We can still grieve our loss of such a beautiful, wonderful man we all took for granted.
But we can still rejoice that in all of this, Jesus is glorified.
And Sheyn is pretty pleased with how all 36 years
and 27 days of his life turned out.

Time

Just a few lyrics from Pink Floyd's "Time"

Ticking away the moments that make up a dull day
You fritter and waste the hours in an off hand way....

...You are young and life is long and there is time to kill today
And then one day you find ten years have got behind you
No one told you when to run, you missed the starting gun

And you run and you run to catch up with the sun, but its sinking
And racing around to come up behind you again
The sun is the same in the relative way, but you're older
Shorter of breath and one day closer to death

Every year is getting shorter, never seem to find the time
Plans that either come to naught or half a page of scribbled lines...
The time is gone, the song is over...

When my brother was in the ICU after having just had his cancerous kidney taken out that he wanted to go see a Pittsburgh Steelers game before he died. (His cancer had metsed to his lungs)
I had rolled that idea around in my head, with every intention of taking my brother to a game this season.
I wanted it to be a surprise.
I had asked a couple of friends in Phoenix to hook me up with tickets.
They were in the process of scrounging them up, which, I have no doubt would have succeeded.
Today I sat down at the computer to check on airline and hotel prices.
Man, I found some very satisfactory prices.
With the "Reserve Tickets" button right in front of me I thought I'd call him and tell him the good news.
I kept trying to call him, but got no answer.
I tried my mom on her cell phone...went directly to voice mail...very unusual for her.
I tried several times on the home phone..nothing...
Then my sister called in a panic and said, "Sheyn is having a heart attack and the Ambulance is here"

WTF?
He's 36!
This is not happening!
They're mistaken!
No, it's true...

I know the cardiac arrest statistics.
I know the likely etiology of his cardiac arrest and that complicates things further...
Due to my vocation I know what the scene looked like....
I know that the prognosis is grim...but I also know that God is great and that Jehovah Raphah heals. I know that God holds time and life in His hands.

There, with the reservations window up,... my brother dies.
He was only 36.

Timing is everything, isn't it?
Is this cruel irony?
I never even got the chance to tell him.
How twisted.
Despite what the enemy tries to whisper in my ear, God is not cruel.
He is faithful.
God has a time for everything.

Ecclesiastes 3

1 There is a time for everything,
and a season for every activity under heaven:

2 a time to be born and a time to die,
a time to plant and a time to uproot,

3 a time to kill and a time to heal,
a time to tear down and a time to build,

4 a time to weep and a time to laugh,
a time to mourn and a time to dance,

5 a time to scatter stones and a time to gather them,
a time to embrace and a time to refrain,

6 a time to search and a time to give up,
a time to keep and a time to throw away,

7 a time to tear and a time to mend,
a time to be silent and a time to speak,

8 a time to love and a time to hate,
a time for war and a time for peace.

Ecclesiastes 4

2 And I declared that the dead,
who had already died,
are happier than the living,
who are still alive.

My brother was dying of cancer. Kidney cancer which metastasized to Lung Cancer.
Lung cancer, which is a particularly cruel form of cancer.
He had a slow and painful death to look forward to.
We all assumed he had time.
He was so fearful of dying slowly and painfully.
Well, God is merciful and loving so He took Sheyn quickly.

Now instead of wasting away he is now in a new, healed, whole glorified body.
He's with Grandma and Grandpa.
He's with my dad.
He's with our brothers who died as babies that none of us have ever met.
More importantly he's with Christ.
He is basking in the presence of the creator of the universe.

Even so,
I'm reeling grief, in the sudden loss of my brother.
My heart hurts for my mother and sister who had to witness his death.
I cannot even fathom what my brother in law is going through having been the one to have been doing CPR. It's physically, spiritually and emotionally exhausting. He tried hard and I imagine there are so many things going through his mind.

It's surreal.
It's hard to comprehend that he's dead.
Did he really know how much I loved him?
Does anyone really know how much we love them?
How many times did I have that little voice tell me to call him, text him, e-mail him...
I'm busy, I have time...
and yet...
he's gone.


Oh, I really don't know what to say.
I feel numb.
I feel like I've cried more than I knew I could, but the tears keep coming.
So many people are calling with their support, which brings the emotions up again.
Yet, in between phone calls I'm blogging
and crying
It's OK
It's somewhat cathartic.

I miss my little brother.

With My Brother Sheyn Joseph Inclán (Right) (8/13/71 to 9/9/06)

Yes, I Smoke..........

I spent the Labor Day weekend smoking in the
back yard.
Three racks of spare ribs to be precise.
I use a different rub approach to beef, pork and poultry.

Raw

I think I have by proprietary rub(s) pretty much
perfected.

Rub

Racked

Smoking more than one rack of ribs, however, is still under practice.

Smoking

Ready

Once THAT is done, then I'm going to start working on a BBQ sauce of my own formulation.
In the meantime, I'm using the old standby K.C. Masterpiece Original and I though I'd try a new one too yesterday.
Budweiser Beechwood BBQ sauce. We really liked it. Just a subtle hint of beer, not too overpowering with a surprisingly nice texture.

Budweiser BBQ Sauce

The nice part about perfecting the art of BBQ is that you get to eat all of the trial and error.

My next try at BBQ, though, Is going to be a Pork Shoulder.
That way I can try my hat at the pulled pork thing.
My wife likes that the best, so let's see how that works.
Now, If I could only convince her to allow me to buy a Caja China.
$299 to $329 (Haven't checked Ebay)

Caja China

Then I could do a WHOLE pig or several roasts or shoulders at once.

Whole Pig.

In the meantime, I'll use my $50 garage sale smoker and love every morsel.
Man, I love BBQ!!!

35th National Down Syndrome Congress

The first weekend of August my wife and I attended the our first National Down Syndrome Conference.
The 35th Annual National Down Syndrome Congress was held in Kansas City, MO.
It was awesome.
Aprox 2500 family Members/Advocates and Self Advocates attended.
Amazingly encouraging.
Well, it was nice to get away without the kids. Our 11th anniversary was the following weekend, so we kind of made it an anniversary getaway.
It was encouraging to see so many families and their loved ones with Down Syndrome all at one venue. They kept referring to each other as "Family", IE the Down Syndrome Family and it indeed felt like that.
Tulsa has a GREAT Down Syndrome support community D.S.A.T. (Down Syndrome Association of Tulsa), but seeing so many from so many areas of the country was a big boost.
I'd say the biggest thing I walked away with was that we sell our son too short.
We've always said that we expect a lot out of him. We believe that he has more potential than sitting in a corner with his tongue hanging out scribbling in a coloring book his whole life.
We've felt that he would be one who'd be out there cleaning tables at Taco Bell and such.
Screw THAT!
We've sold him short!
There are those with Down Syndrome with Associates Degrees!!
Those with Down Syndrome doing amazing things!
-Teaching Martial Arts-
-Theatrical Performance-
and more.
The Self Advocate that got me pumped the most was Karen Gaffney.
Stink'n AMAZING speaker. She was a better speaker than most "Normal" people I've seen speak. I'm not even exaggerating.

====

Karen Gaffney, self-advocate, long distance swimmer is about to cross Lake Tahoe.

The hard way.

On September 25, 2007, Karen will swim the 12 miles across Lake Tahoe, all to raise funds for the National Down Syndrome Congress.

Karen is best known for being the first person with Down syndrome to complete a relay swim across the English Channel. Now, to raise funds for the National Down Syndrome Congress, Karen will attempt to swim across Lake Tahoe!

The target date for the swim is Tuesday, September 25th, weather permitting. Karen will have Wednesday, the 26th and Thursday the 27th as back up days if she needs them.

Since her Channel Swim, Karen has kept up her string of “Firsts”. She has completed seven swims across San Francisco Bay while preparing for and competing in the “Escape From Alcatraz” relay triathlons that includes the 1.5 mile swim from Alcatraz to the St. Francis Yacht Club. She completed the “ Round the Rock”swim – round trip swim from Aquatic Park, to Alcatraz Island, around the Island and back to the park – about a 4 mile swim Karen completed in 2 hours and 15 minutes!

Karen regularly swims 2 miles a day, and she will step that up in preparation for her Tahoe swim. She will swim the length of Donner Lake, near Lake Tahoe, in a Masters swim event on August 11th, a 2.7 mile swim. She will make the attempt on Lake Tahoe after spending a couple of weeks swimming in the Tahoe area, getting acclimated to the elevation. Karen says “I want to show others that people like me can accomplish anything they put their heart to!”

=======


My little Self Advocate (Who will be 3 in October) will start school tomorrow.
A Special School here in Tulsa called The Little Light House.
It's as school totally supported by donations that has an international reputation and proven results. We are so excited to see his potential realized through the resources we have here in Tulsa.
Not to mention all of the little sibling therapists that love him and teach him each and every day.

We Pray this over our little Self Advocate:


"being confident of this, that he who began a good work in you will carry it on to completion until the day of Christ Jesus." -Philippians 1:6

6

One step closer.
My great niece and nephew are now living with us.
We are that much closer to having 6 children.
The courts mandate that we have them in the home for 6 months before we can move toward adoption.
Every one is going through the adjustment period as could be expected.
We are all very excited to have the ball rolling in the right direction after so much uncertainty.
God is faithful and is moving at His own pace so we can only put our trust in Him.

The Good The Bad And The Ugly

The Good
Well, my brother cancerous kidney was removed without much difficulty.
They had believed that it may have spread to his pancreas and spleen, but when they went in there were no metastacy to either of the other two organs. My brother is at home and healing well.
My brother is a bit of a professional groupie/roadie and is well known among many of Omaha's local bands. There are a few bands that have decided to have a benefit concert to raise money to pay for my brother's medical expenses. They are planning on holding it some time around his birthday the second or third week of August.

The Bad
The lungs, seem to have gotten the brunt of the cancer mets. They are putting him at stage four lung cancer. Also, his kidney levels are off. It doesn't seem that his sole kidney is picking up the slack for its missing mate. Not good.


The Ugly
As I've said before he went through chemo and radiation during his early teens, has seen our sister go through recent chemo and radiation. With those factors weighing in on his mind he is seriously considering not to undergo any of it.

New Tattoo

OK, my wife wanted to get me a new tattoo for Father's day.
We got a baby sitter, went out on a date..Italian food, if you want to know.
Then we went to a highly recommended tattoo artist here in town.
Jose Sanchez AKA "The Ink father"
Well, he was in such high demand that the first opening he had was last night.
After two hours. It finally turned out as shown.
(It's on my right calf.)


Stay tuned.
I want at least two more.

Good News / Bad News

There was a Daffy Duck cartoon where he says, "Ooooh, I hate not knowing what it is..."
My brother's Red Blood Cell elevation had the so called experts scratching their collective heads.
They deemed it Polycythemia Vera even though he didn't fit the demographic.
Well, if you can consider knowing the etiology of a problem good news, they found it.
My brother was told he has kidney cancer.
Some how we don't feel like celebrating.
How can it get worse?
It's Metastasized to his lungs and quite possibly pancreas and spleen.
So, now two of my siblings have some serious cancer going on.
July they are going to take my brother's kidney and then biopsy the lungs, spleen and pancreas.

Sux

It's Not Supposed To Happen

He was only 37.
I Loved him.
We were really close....at one time anyway...
We were in each other's weddings...I was at the hospital when his first daughter was born.
Things don't always go as you hope.
Chris made some very bad decisions in life.
Decisions that cost his business, his marriage, his friendships.
Despite all of the betrayals and deceit though, I still loved the guy.
He had a special place in my heart.
Chris died on the morning of Friday, April 27th.
He had some health problems that seemed to get worse, like a stone picking up speed as rolls down hill.
He had been relegated to a wheel chair the last year...developed three staff infections... a lung infection which they were treating with antibiotics.
Thursday the 26th he began having difficulty breathing so went into the hospital.
That night he was put on a vent in the ICU.
The next morning he had a cardiac arrest and died.
Pulmonary Embolism, more than likely.
37 is young.
Heck, I'll be 40 this year and I feel young.
37 year olds aren't supposed to die like that.
Car crash maybe...accident at work...but not like that.
He was such a gifted man.
Talent, smart, funny (He enjoyed his own humor the most)..wasted.
He really did squander his talents because of demons he had so much trouble shaking.
So many bridges that carried so many friendships burned...
The faces at the funeral were grieving the loss of his life, yes, but more so I think, for the loss of what could have been with Chris.
I think there was healing in his death though.
People were forced to deal with issues.
His mother hadn't seen her granddaughters in years.
Chris' ex-wife attended...along with the girls.
There seemed to be much needed reconciliation between the two women.
Life renewed because of his death?
I certainly hope so.
The whole thing really made me think about the importance of restoring relationships.

2 Corinthians 5: 18-19
"Now all these things are from God, who reconciled us to Himself through Christ and gave us the ministry of reconciliation, namely, that God was in Christ reconciling the world to Himself, not counting their trespasses against them, and He has committed to us the word of reconciliation."

CRAP!

My brother has received some bad news this week.
Back in December he suffered from idiopathic vertigo and syncope.
For days he was unable to get off of the floor of his apartment and lost many hours of work...the hospital was unable to explain what had happened...three different blood tests kept clotting so they decided to forgo further blood tests and equated it to a benign vestibular dysfunction....inexplicably, the symptoms went away.
Well, they reappeared again last week. Blood tests this time revealed an incredibly high Red Blood Cell count. He had a RBC count of 22!
The hematologist stated that it was the highest he's ever seen. My brother told the doctor, "This scares the heck out of me."
The hematologist leaned toward my brother and said, "This scares the heck out of me too."
The doctor told him that he has a disorder called Polycythemia Vera. Even considering the condition, the hematologist stated that my brother had the "Thickest blood" he had ever seen. They are really surprised that he is still alive.
One of the treatments for Polycythemia Vera is taking a unit of blood a week.
My brother is requiring the taking of two units a week.
So....needless to say, our family would really covet your prayers.
Thanks



Note: From The National Heart Lung And Blood Institute website.

What Is Polycythemia Vera?

Polycythemia vera (POL-e-si-THE-me-ah VE-ra), or PV, is a rare blood disease in which your body makes too many red blood cells. These extra red blood cells make your blood thicker than normal. The thickened blood flows more slowly through your small blood vessels and can form clots. These clots can cause heart attack and stroke.

Blood cells are formed in your bone marrow—the soft tissue inside bones. In addition to red blood cells, your blood contains two other types of cells: white blood cells to help fight infection and platelets to help your blood clot. If you have PV, your bone marrow produces too many red blood cells, but it also can make too many white blood cells and platelets.

Red blood cells also are called RBCs or erythrocytes (eh-RITH-ro-sites). Normal red blood cells look like doughnuts without holes in the center and have an average lifespan of 120 days. Red blood cells contain hemoglobin (HEE-muh-glow-bin), an iron-rich protein that gives blood its red color and carries oxygen to the body. Red blood cells also remove carbon dioxide, a waste product, from cells and carry it to the lungs to be exhaled.
Important General Information

PV is a rare, chronic disease that can be fatal if not diagnosed and treated. The cause of PV is not known. It develops slowly and may not produce symptoms for many years. Sometimes, your symptoms can be vague and nonspecific. Many people find out they have PV from blood tests done for other reasons. It is more common in adult males 60 years or older. It is very rare in people younger than 20 years.

With PV, thicker than normal blood slows down the flow of blood to all parts of your body. Clots can form more easily, which can block blood flow through arteries or veins. The slower flow of blood means your organs don’t receive enough oxygen. The shortage of oxygen can lead to angina, congestive heart failure, and gout. Slower blood flow also deprives your arms, legs, lungs, and eyes of the oxygen they need to perform normally. This can cause headaches, dizziness, itching, and problems with your vision, such as blurred or double vision.

PV may also cause you to develop stomach ulcers and kidney stones.

A small number of people with PV may develop myelofibrosis (MY-e-lo-fi-BRO-sis), a condition in which your bone marrow is replaced by fibrous (scar) tissue. The abnormal bone marrow cells may begin to grow out of control. This abnormal growth can lead to acute myelogenous (my-e-LOJ-e-nus) leukemia (AML), a disease that worsens very quickly. In AML, too many immature white blood cells are found in the blood and bone marrow.
Outlook

PV is a serious illness that can lead to death if it is not treated.

PV can be controlled with treatment, but no cure exists. If you think you or someone you know might have PV, it is important to talk to your doctor about it. Some people with PV need only minimal care. Others will need more intensive treatment. Treatment can control PV and lessen the risk of blood clots, heart attack, and stroke that can result from the disease.

Death By Caffeine

I love energy drinks!
For the longest time I was a Red Bull fan.
I still like the flavor of Red Bull, but have developed a new favorite.
NOS.

Stink'n great [better flavor IMHO] and with more caffeine.


Red Bull has about 80mg of caffeine
or 9.64 mgs of caffeine per fluid ounce.



NOS has 250mg of caffeine or 15.63 mgs of caffeine per fluid ounce.




While looking for caffeine content in energy drinks I came upon a cool tool:

Death By Caffeine

Determine how much of your favorite energy drink it would take to kill you.

Though, this would be a rather unpleasant way to die.

Easter Brisket!

In celebration of the Risen Savior I smoked a brisket for Easter.
Isn't that an Easter tradition here in Oklahoma?
My first Brisket.
It was most yummy.

And Now The Good News!

Next week I get to go back to the day shift!
Though I prefer much of the elements at night better than days, It'll be nice to have normal times with the family.
just thought I'd share.